I was at a social event recently. It was bright and there was music. I was my usual self until I came out of the venue. I had to close my eyes and walk as if blind. It was terrible, Ethel walked in front of me and had to tell me which way to turn. I used my walking stick like the white cane but it was no use. My brain was completely useless; is this how I will feel all the time in the latter stages?

Feeling a bit scared 🥶

I can see both sides of this argument as having been on both sides. Paid professionals tell us they are on leave, yes they need time to recharge. But what about us and our carers who cannot get this time! What is good for for one person should be good for all.

Carers and pwds live with it 24/7, no break. Respite is hard to come by; it should be a right.

Ironically, when a professional I used to think that I couldn’t do it 24/7, now I live with it all the time. Be careful what you think!