4th Anniversary

Well, it is 4 years ago today I was diagnosed with dementia, albeit the wrong type. My whole world has changed bar it’s one constant; the love off my family. Without that, there would have been no positives in my narrative (tick), only negatives (cross). The changes include (but not exclusively);

Many, many tests and 10 day hospital stay; Cross

7 lumbar punctures, only one painless; Tick/cross

Definitive diagnosis of PCA; Tick/cross (glad to have diagnosis, not glad to have dementia)

Senses easily overwhelmed (Cross)

Easily exhausted Cross

Inability to travel far. Cross

Loved to go on holiday to Iceland; miss that.

Able to create memories. Tick

No worries about work. Tick

Moved to rural Scotland. Massive. Tick

Friendly folk, better post diagnostic support,

Alzscot

Made new friends who take me as I am. Tick

Partake in research, modify dementia strategy Tick

Due to PCA, still have brilliant memories, cognition

still strong, able to retain interest in Current Affairs

Tick

More time with family, and dogs! Double. Tick

As you can see the ticks outnumber the crosses, but I recognise that as time goes by, this will change. However I keep looking at and using the positives as long as I can, with the exception of some dark times, especially in the middle of the night.

Coping with self isolation. Not all pc..

Some of this won’t be very pc! But I try to show my life as it really is.

We are self isolating due to underlying illnesses. On the first day, Monday, I was frustrated and angry. It took me time to come to terms with it, I was not a nice person to be with…

The media were partly to blame; scare stories after scare stories. Then the “British Can Do” attitude started to be shown and I realised I needed a kick up the a**e.

My main enjoyment of the day is interacting with our dogs, I still walk them, keeping my distance from humans. Ethel and I obviously chat, trying not to talk about it, except with our dark humour; very necessary for this and Dementia.

I pass my time on the IPad, looking at social media, not saying much so don’t spend so long on it as usual. My vice is playing games; I used to play “God” games on a PC as well as these First Person Shooters that people deride, always alone, mainly for the story. I have tried to play on a Mac but it is too complicated now. Luckily, there are some very good ports onto the IPad: “Civilisation VI”, is by far the best. A bit expensive but is exactly the same as on a PC. It puts you in charge of running a nation from the Stone Age onwards. I also play free games, that are mindless, but do take your mind off reality.

I still read all the papers; Aberdeenshire have an app that lets you read all the papers, as if they were papers (except the Times), it also has a lot of good magazines; CountryFile, BBC wildlife, Focus etc. It is called “PressReader”; worth seeing if your council has paid for it!

I am using Zoom a lot to keep up with folk, but I was doing that anyway.

Many will think that I am shallow playing games, but horses for courses, and I was doing it before Dementia arrived.