I am changing my Blog pages and title to workafterdementiadiagnosis.wordpress.com. This is because I am creating a booklet on this subject and I will keep it up to date, both to keep me on track and also to inform people,how I am doing. I will be brutally honest if I am finding it difficult.
Well, it is 4 years ago today I was diagnosed with dementia, albeit the wrong type. My whole world has changed bar it’s one constant; the love off my family. Without that, there would have been no positives in my narrative (tick), only negatives (cross). The changes include (but not exclusively);
Many, many tests and 10 day hospital stay; Cross
7 lumbar punctures, only one painless; Tick/cross
Definitive diagnosis of PCA; Tick/cross (glad to have diagnosis, not glad to have dementia)
Senses easily overwhelmed (Cross)
Easily exhausted Cross
Inability to travel far. Cross
Loved to go on holiday to Iceland; miss that.
Able to create memories. Tick
No worries about work. Tick
Moved to rural Scotland. Massive. Tick
Friendly folk, better post diagnostic support,
Made new friends who take me as I am. Tick
Partake in research, modify dementia strategy Tick
Due to PCA, still have brilliant memories, cognition
still strong, able to retain interest in Current Affairs
More time with family, and dogs! Double. Tick
As you can see the ticks outnumber the crosses, but I recognise that as time goes by, this will change. However I keep looking at and using the positives as long as I can, with the exception of some dark times, especially in the middle of the night.